Our Vision
The vision of ASCSF is to increase education, health awareness, life skills, promote self-sufficiency, and improve the quality of life of individuals living with Sickle Cell.
ASCSF was founded to meet the unmet needs of individuals living with Sickle Cell Disease. The foundation educates people with Sickle Cell about how to manage their disease and improve their quality of life.
ASCSF promotes the concept, “live a life worth living”. Therefore, ASCSF provides people with the resources, materials, and tools to foster interdependence, which ultimately increases education and their quality of health care.
We address the needs of individuals with sickle cell disease and their families by emphasizing educational and support programs and services that meet the physical, psychosocial and economic needs of our clients.
With a growing population of individuals with sickle cell disease and sickle cell Africa, the primary focus of ASCSF is to educate, screen and counsel those persons at risk of having children with sickle cell disease and other hemoglobin disorders.
Our purpose is on-going and our need is ever present. As long as babies continue to be born with sickle cell disease and sickle cell trait, there will be a need for our services. Until there’s a cure, we will continue to serve.
The vision of ASCSF is to increase education, health awareness, life skills, promote self-sufficiency, and improve the quality of life of individuals living with Sickle Cell.
The Mission of ASCSF is to provide comprehensive social services to improve the quality of life of individuals living with Sickle Cell.
(a) To provide quality and comprehensive services through diagnostic testing, evaluation, counseling and supportive services to individuals and families facing the daily challenges of the disease and those at risk.
(b) Ongoing follow-up diagnostic testing, counseling, and tracking services for parents with infants who screen positive for the trait or disease;
(c) Family Counseling and Support Services;
(d) Coordination of medical, social services, education and support and promotion of teacher education and screening services.
(e) In addition, ASCSF will make outreach to other African region's for family education and the identification of the incidence of sickle cell disease.
Couples for whom there is a real possibility of bearing children with sickle cell anaemia, are able to find out the haemoglobin genotypes of their unborn child in early pregnancy. Thus, timely and adequate information, support and counselling can be provided.
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ASCSF and its member organizations engage in community outreach and program efforts throughout the United States. These efforts may include but are not limited to: educational campaigns that build awareness of SCD and related conditions and programs that provide services such as genetic testing and counseling, case management and psychosocial support for individuals and families impacted by sickle cell disease.
In addition, ASCSF has been tasked with creating educational materials for the African community. The development and promotion of these publications will aid Africans in understanding SCD and improving their overall health outcomes.
As ASCSF aggressively continues to combat the many challenges of sickle cell disease it is anticipated that many new programs will be developed in the near future in an effort to effectively serve those populations affected by SCD.